This Sunday is going to mark my 4 month mark post transplant. Time is going by, sometimes I can't believe it has been 4 months already and other times it feels like an eternity. Sorry I haven't been writing very often. I have not been very inspired with words lately. You don't know how many times I have sat down at the computer in the past few weeks and attempted to write a blog entry and my mind is just blank. My life still isn't that exciting and consists of a lot of time at home. I am still keeping myself pretty busy by adopting lots of sewing projects and have started compiling all my recipes onto 4x6 laminated cards. It is nice having the time to do these fun things that I never had the time to do before because of work. Still it is hard every now and then not having anyone my own age around since all of my friends are in Montana. But I am glad that I have an independent personality because I could see how it could be a lot harder if I wasn't independent. I enjoy doing things on my own probably more than most people.
As for the health side of things, I am doing pretty good. I did have a little spout of feeling lousy about 1 1/2 weeks ago. I was having some stomach issues again and was vomiting up almost everything I ate. My energy level also took a dive and I was resting in bed for several days. Let me tell you it was not very much fun going through that junk again. It made me appreciate how good I have done for the most part in not having to experience it as much as others. When I saw the doctor last week he thought my stomach issues might have been due to him putting me on a different medication. So he switched it and this past week I have been doing a lot better. So hopefully that is what was causing all those problems. I saw my doctor again today and he switched some things around so we will see how things go over this next week. The one thing that is lingering now is this wonderful rash on my skin that wont seem to go away. Due to this I am still on prednisone and probably will not be off of it until this rash resolves itself. So pray I can be diligent in putting the cream on and that it will resolve itself quickly, so I can get off this "devil drug". After I am off the prednisone they said I can start introducing fresh produce back into my diet. If you can believe it I haven't eaten raw produce since May 2008. I miss it and can't wait to start eating it again but after so long of not having it, it does become second nature to not think about it too much.
I did receive some good news at the doctor today. He decided that I only need to come in for labs once a week now. So my only trip to the infusion center is going to be Tuesday's. I will get labs drawn and then see him every Tuesday. I count this as a milestone because that means that my blood work had been consistent enough where they aren't worried I am going to need replacements. I also get next week off from seeing him for "good behavior" or maybe the fact he forgot he wasn't working next Tuesday. Nonetheless I don't see him for another week and a half. I am hoping by then the rash gets a lot better and he is able to reduce some of the meds. I also just wanted to mention that last Sunday was the marathon for the Leukemia and Lymphoma Society that Mike and Dawn have been training for. They are truly a incredible couple and can't thank them enough for all the hard work and many, many miles they put in training for it and running the actual race in my honor. Thanks to everyone who donated towards it, your contribution is going to go towards research to save many more lives. Thanks Mike and Dawn!!! Congrats on all of your hard work, I love you guys!!!