Back Home (Day +20)

I am pleased to report that I am back at home and not at the "resort" anymore. I got discharged on Monday due to me convincing the doctors that I was well enough to go home. They agreed and here I am back in the real world again. It was so nice to get out of bed and walk again. I have to say the first time I stepped out of my room to walk to the nursing station I thought my legs were going to collapse. I can best describe them as wet noodles. I guess you lose muscle pretty quick when you are unable to leave your room for 3 weeks straight. I know that day by day my muscles will get stronger, but it is definitely weird for me to have a hard time just walking around or going up stairs. The simple things that came so effortlesly before. But so far things at home have been pretty good. I am eating better than I was in the hospital with some nausea. I just think that my love for spicy food might have take a backseat for a little while. I need to realize that my stomach can't handle everything it used to right now. The only thing that I have really been struggling with since I have been home is sleeping. In the past 2 nights I think I have gotten a total of 5 hours sleep combined. I have just been laying there so restless with my mind going a million miles an hour. I have no idea why this is happening, I have never been one that has struggled with sleep. I am just hoping that it resolves it self fast because frankly I am exhausted.

As for today, it was my first appointment at the infusion center since my discharge. I arrived there at 11:30 am and didn't leave until about 5:30 pm. So needless to say it was quite the long day. All of my blood counts looked good but I had low potassium and magnesium. So that meant a 4 hour infusion. This was my first real experience of having to spend an entire day there. I now know I am going to try to bring more things to entertain myself, because that was the longest 4 hours ever. If you are looking at my times thinking 11:30 to 5:30 is 6 hours and not 4 you are correct. Not only do you have to stay to get replacements, but when you go in it takes usually 1-2 hours for your lab results to come back after they draw your blood. So hopefully this will not be an occurrence every time I go to get labs drawn since I go three times a week. But I am starting to take magnesium supplements at home now so hopefully that will help out a little. Tomorrow I have nothing to do so hopefully I can get some good rest at home because Friday I have three appointments to go to. Busy times!!! I have a feeling my Day 100 is going to be here before I know it!